Tuesday, October 12, 2010

A few things

Last Tuesday, we received an email from our nurse, Katie, saying they received confirmation the surgeon in Boston has agreed to take Nick and perform surgery - the one where she will open up his tummy and apply chemo directly to his abdomen. Katie wanted to know if she could set up an appointment with the surgeon at Huntsman who is coordinating the surgery with the surgeon in Boston. He would explain all the details. But first, Nick would have to have a laproscopy, where they place a camera right in his tummy to take a peek at exactly what is in there. They would want to do that once he has completed his next upcoming round of chemo (two week treatment) starting on the 18th. This was much for us to take in. I forwarded on to Nick so he could decide if he wanted to go further (I, at least, wanted to get the details first before making a decision). Nick declined to discuss it, saying he'll think about it later.

By Thursday, we were up at Huntsman getting labs done. He asked to talk to Katie. I reminded him he doesn't have to do any treatment/surgery, especially when this is all experimental anyway. We told Katie we thought surgery was only an option if the chemo wasn't working, but she explained it was an option they were all waiting for - a very hopeful and preferred treatment. She also explained Nick will have to have a laproscopy, regardless if he has surgrey or not, probably another CT scan, too. Nick thought about it and said, "Well, I really like Boston..." so she'll go ahead and get some appointments set up so we can get all the information on the table and see if it is something he wants to pursue. If he decides to go with it, he could have surgery next month.

On Friday, Katie called to let know his white cell counts were at zero again, to which he promptly packed his bags, took off to his dads for the night and then drove to Wyoming to visit his best friend, Rob, and Rob's family. Well, just know where the closest hospital is and take a thermometer, I advise. Rob has a new baby, Paxton Nicholas, who is about 6 months old, bursting with cuteness. Rob also took Nick fishing and yes, after 21 years, Nick finally caught his first fish on his very own merit. It was a proud, manly moment.


Yesterday, Nick and I drove to go get labs done again and he played me his new theme song, by Rebelution - "Bright Side" (you can listen if you go to: http://www.youtube.com/watch?v=zrNzKEMD2Zc). Here are the lyrics...

Don’t trip you know I’m always by your side
You'll be fine for the ride just be calm
Take a breath and don't cry, look on the bright side

Rise up now make an impact
Now get your bags packed
Think about your life, the thrill
Don't you cry look on the bright side of life

Somebody told me everything is alright
That life's too short to be afraid
Which is leading up to what I want to say
Living should be giving in a way
Contemplating every single day
And learning so we educate and be positive, it is what it is
Come and set examples for the kids
I don't want to scare you no I don't
It's time you be a role model so open up

Don’t trip you know I’m always by your side
You'll be fine for the ride just be calm
Take a breath and don't cry, look on the bright side

Rise up now make an impact
Now get your bags packed
Think about your life, the thrill
Don't you cry look on the bright side

Be kind and keep a smile
Keep your head up and try to find a friend or a child
And encourage their life, look on the bright side

Rise up now make an impact
Now get your bags packed
Think about your life, the thrill
Don't you cry look on the bright side of life


Well done, Nick. Our family takes off on Thursday to Philadelphia to see the Flyers vs. Penguins game. We are all excited for the trip! We get home on Sunday and Nick will be back at Huntsman on Monday for chemo. Til then, we'll all look on the bright side of life!

3 comments:

Chris Ulvin said...

Good Morning Lori and family,
Your posting today confirmed my thoughts of who Nick is in Christ: A Leader.
I'll copy what my Wesley Study Bible says about Leadership: Humble, daring, discerning, empowering, and protecting: these are the characteristics of leadership. With humility, Nehemiah weeps to align himself with God's purpose; he daringly risks his privileged life to do what is right. He discerns sad truths and hidden possibilities: motivates and equips the people for good work. Finally, he guards the boundaries of faith against all enemies within and without.
Nick is no mere cancer patient: Nick grows leaders. I witnessed lots of those WACKY leaders at his Charity Softball Tournament. Nick takes initiative, but shares authority. This is evident in his willingness to consider everything the doctors and nurses suggest. Nick counts himself among the servants. May God bless all of Nick's efforts.
Love, aunt Chris

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Anonymous said...

Nick and family. You have been living the lyrics of your new song all along this journey. I think it was written for you. Some hard choices to make but I know you'll make the right decisions. Love and light to you always GM Jennie xx