Tuesday, May 13, 2008

I'ts ok to say "REMISSION"!

Hi everyone:

Nick had his first post-op MRI done last Friday - they are normal! We also had a follow-up appointment with Dr. Chen and she is thrilled with Nick's response to treatment. She was down-right giddy.

In the world of rhabdo, we are hesitant to use the word "remission" as the term implies the cancer is eradicated, when in reality, we really only can confirm the cancer is gone from the original tumor site. The term "no evidence of disease" implies a more accurate status. However, Dr. Chen said to go right ahead and say "REMISSION". So, ok... remission it is! My goodness that sounds delightful!

I recently wrote an article about childhood cancer and shared it with our company, Quadrant Living Exerience, LLC. They were kind enough to allow me to use it in their May newsletter. If you would be interested, here is the link:

Again, the support has been amazing and unbelievably powerful.

With love,



Chris Ulvin said...

Dear Lori
Thanks for the update - what a wonderful Mother's Day gift you were given on Friday. I enjoyed your article - miracles are great stories to share. Love, aunt Chris

Obsessedwithlife said...

Congrats!! I'm going to check out the article too.

Jennifer said...

Lori- The article was beautifully written. So real and so inspiring.