Wednesday, August 18, 2010

Dropping "F" Bombs!

...and it's back. Nick had his CT done at 8:45 and we finally met with Dr. Voorhees at 11:00 who had the unfortunate task of letting us know the *!*?* cancer is back in Nick's abdominal wall, in multiple places. The good news is that his lungs are clear and his organs remain unaffected. Surgery is not an option because of there being multiple areas affected and radiation is also not an option because the risk of damaging his internal organs. Nick will have to undergo a PET scan as soon as possible (working through insurance b.s. as I type) to make sure there isn't cancer anywhere else. Nick's oncologist is out of town until the 30th. We hope to have PET done next week so doctors can present his case to the tumor board, also on the 30th. We also met with Dr. Andtbacka, a surgeon at Huntsman and associate of Dr. Mulvahill. He walked us through the results of the CT mentioned above. He also has an associate out at the Univ of Mass (Boston area) that specializes in cancer of the appendix. He is going to ask her to consider Nick's case, too. She hasn't worked with rhabdo before so the chances of her taking his case are slim.

Nick and I are doing ok, but there were many tears with several staff members at Huntsman and my heart broke telling Carly and Kelsey - we sat together and had a good cry. I told them it's times like these I wish I had great big boobs so I could snuggle them in to me close. They had to snuggle my shoulder bones and ribs, instead.

We're sad, scared and pissed off. So we'll all get in our jammies, watch some Chris Farley videos, pop some popcorn, make some Kool-aid and surround ourselves with our love.

With an enormous sad and grateful heart, I thank you all for praying for Nick and our family.

Lori

7 comments:

Blake and Laural said...

We love you guys and are praying for you all. -Blake and Laural Anderson

Anonymous said...

I'm so sorry. i've been thinking of you all day - hoping for the best and waiting for the update. I've got some tears here in WI for you...tThere are no words for how incredibly wrong this is...'f' bomb is about it.

Paula Lietzke, Nolan's mom from rhabdo-kids

Rachael said...

Are prayers are with you, too. Family is the best comfort and you have a strong one.

Lorin Decker Buck said...

Well, shit. I apologize, but that's the first word that comes to mind. This is so NOT right! Nick has been doing amazingly well, and now I can't help but feel sad and discouraged.

But we can't give up. None of us knows how this will go, and Nick has already beaten back the beast twice. I just feel rotten because the treatments are so hard on our kids and disrupt the lives they want to be living.

We are covering you in prayer and positive thoughts, as are many others.

Love and hugs,
Lori

AP Reynolds said...

We are so sorry!! Nick looked so good at the tournament. We will be praying for you and sending you you all good mojo!!! We love you!! Jenn, Burk, Cali, Paige & Caden

Laurel said...

Many Many prayers tonight. There are no words. All our love and prayers. Brad and Laurel Wilkinson

Sarah DiGerolamo said...

I am very sorry to hear about this latest relapse. It is a very hard word to hear, and even tougher to go through. But you will get through it. They will find "plan" and new chemo and you will fight again. I will keep you in my heart and prayers.
Love,
Sarah www.caringbridge.org/visit/vinnydigerolamo