Ascorbic Acid

We have done some extensive research on ascorbic acid via iv therapy (massive doses of vitamin c) and Nick has chosen to proceed with this treatment. To quote from a PNAS paper dated September 20, 2005, Vol 102, No. 38 - "Our data show that ascorbic acid selectively killed cancer but not normal cells, using concentrations that could only be achieved by iv administration and conditions that reflect potential clinical use. Ascorbate administered iv is likely to be safe in most patients, with virtually no toxicity compared to most currently available cancer chemotherapy agents." - communicated by J.E. Rall, National Institutes of health, Bethesda, MD, August 2, 2005. Obviously, the written research is extensive, but this gives you the nutshell version. We are fortunate to have a clinic near us that can administer the ascorbate and Nick had his first treatment yesterday. We sat down with the doctor and she review Nick's blood results (before treatment):

Nick is just a little bit low in his red and white cell count; that's ok and expected after the brutal chemo treatment he went through. What she has never seen before is that he has ZERO candida antibodies; usually candida is rampant in patients having undergone chemo and radiation. In addition, his heart is in excellent shape (so the red devil, aka doxorubicin, didn't affect his heart) and there is no indication WHATSOEVER of any hidden inflamation (cancers cells busy munching away at his healthy cells). His albumin levels are perfect (albumin is the protein that covers the cell walls and low levels may indicate cancerous activity). She feels there are no indicators of cancerous activity in Nick's body. He is a healthy, normal 21-year old young man. Had she seen his file and not know his background, she wouldn't have known he ever had cancer. His vitamin d levels are low but he is boosting his body with supplement drops. Between the ascorbic acid (adminstered once a week) and vitamin d drops, he is ramping up his immune system so his own body can keep the cancer cells at bay. She did some other tests and we have a very clear and concise baseline to watch and compare. Now we should be able to spot cancer activity in the very beginning of cell malfunction rather than have to wait for a tumor to be found on a scan.


I am extremely grateful for his decision to be proactive in maintaining his health. Within the past 4 weeks, four rhabdo warriors have earned their angel wings - all young adults! We also lost our dear friend, Lisa, last month. It has been a heartbreaking month to say the least. With this in mind, Nick's Warriors are out in force and will be participating in both the Philadelphia Broad Street Run on May 1st and the Ogden Marathon on May 15th. An annoucement with details will be posted tomorrow.

Please pray for another rhabdo warrior - David Buck (his mom's name is Lori, too). He is also 21 and he and his family could use your support. www.carepages.com/carepages/DavidBuckUpdates/updates

Thank you, everyone! I'm truly on bended knees giving thanks for Nick's miraculous health. Please join Nick's Warriors in our efforts to eradicate cancer and empower young adult cancer survivors!

Lori

Moab and Vail

Nick here.....

So this past week has been CRAZY. I arrived in Moab Tuesday night and woke up Wednesday morning to clear skies and warm weather. I love that place. I spent the next two days riding horses up the canyon to fix washed out trails and learning how to rope like the real cowboys do. It was a great time and always is when I go there. Its a good thing when you leave Moab walking like an 90 year old man.

My Dad met me in Moab on Friday and we left together on Saturday morning for the First Descents Ball in Vail. FD has this ball once a year to raise money for the program and its their biggest source of income for it. Since it was a hat party I was sure to wear my cowboy hat with my rodeo shirt, boots, jeans, and belt buckle! The Ball took place at the Ritz Carlton in Vail and it sure did live up to the name. It was the nicest ballroom I have ever seen with a GREAT band playing. I was told that last year there were around 250 people who came to the ball, but they were expecting close to 450 this year! So FD is officially starting to take off. The first camp in 2001 only had 15 campers..... they expect to have 1,000 in one year for 2015. Awesome!

So I spent most of the time talking to past counselors that I know well but did not see one fellow camper that I have gone to camp with, which I was surprised. I expected to see a few of them. But I did meet a lot of awesome people that have been to some of the other camps in other locations. All of them with great stories of survival and how FD has changed their lives. Anyways the dinner was great, the auction was great, the people were great, the music was great, it was just all GREAT. I was sad when the party ended. But the good news is that they probably raised around $300,000 that night. One night!!!

I am also in the process of getting a movie premier together of the documentary film about FD which I will most likely be showing at the dinner before the Ogden Marathon as well as the marathon in Philadelphia. So if your going to be at any of those two events this May be prepared to see how amazing this camp really is.

Lastly, I just wanted to thank everyone who has donated to my foundation because I have been reminded yet again how much we really make a difference with our efforts. Also I want to thank Brad Ludden for all he does and for getting the whole FD program where it is today.

Thanks everyone!!

Love,

Nick (Nickname)

Going Great!

Carly, Nick, Lee & Kelsey

Nick has had a great week! Last Wednesday, he went in to sign off on his clinical trial to discontinue treatment. Final results inlcuded a weight of 148.8 - a gain of almost 10 lbs in one month! His blood tests came back a little low - he is anemic - we can certainly work that out!

Grandma, Carly, Kelsey & Nick

We went to Spokane to watch the NCAA tournament and got to see the Maryland vs. Michigan State game - fantastic! We were only able to see the 1st half of the Purdue vs. Texas A&M game (which went into overtime) because we had to catch our flight home. We had some quality time with our extended family there, too.

He took off yesterday for Moab to have some cowboy time during his spring break, sporting his first pair of new cowboy boots. Then he's off to First Descents Ball on Saturday in Vail.

We are in full swing introducing WACKY - Warriors Against Cancer in Kids and Young-adults. This is the fun marketing side to Nick's Warriors. It is our intent to have WACKY represented at all of our fundraising events. The Broad Street Run in Philadelphia is our next event on May 2nd, followed by the Ogden Marathon on May 15th. I will be posting additional information within the next couple of weeks.

For all of those that continue to pray for Nick, please take a moment to acknowledge His grace in answering our prayers with blessing Nick with good health. Celebrate!

Love Lori

Sometimes it takes someone on the outside looking in...

"No Evidence of Disease" is a funny space to live in. When you have an actual tumor or markers, you are actively and aggressively fighting cancer with various treatments. When there isn't anything to see or define active cancer in your body and treatment has stopped, you aren't technically in "remission" and can't consider your self "clear" until after 5 years of clean scans. So where do you fit in? What is going on in your body that you can't see? Why is the fatigue still so strong? What is normal?

I'm sure these are the feelings Nick has been experiencing this past month. I really can only be so empathetic as he is the only one really experiencing this journey. As his mom, I continue to encourage him to embrace whatever sense of normalcy he can, on whatever level. It wasn't until we had a visitor, Thomas, from back east, that gave us a brilliant perspective.

Thomas continued to dominate the dinner conversation his first evening here, when he stopped to look at Nick and proclaim, "The cancer card is over. Go get a job. Go apply for an internship. Do SOMETHING and start contributing to YOUR future!" Nick stumbled in his reply, stating his has BIG plans for the summer, all involving kayaking. But Thomas wouldn't let it go. "What else are you interested in? What classes are you taking in college?" He applauded Nick's commitment to First Descents and his being a counselor this summer. But what else? He gave Nick much to think about.

When we all came home from work the following evening, Nick announced he had an interview set up with the Utah Grizzlies (Salt Lake City's minor league hockey team) for an internship. Nick would be able to earn college credits and apply his efforts in his business major, if he was selected, in an area Nick loved - hockey! Nick's interview was yesterday afternoon. It last about 30 seconds since Nick is already on a first name basis with the director of PR. It consisted of, "So, Nick - what do you want to do and can you start Friday?"
Sometimes you need to hear "Get off the couch!" from someone other than Mom and Dad. Thank you, Thomas!

Upcoming events:
March 19th & 21st - NCAA men's basketball tournament in Spokane, WA
March 23rd - 26th - Moab, UT for spring break
March 27th - Vail, CO for First Descents Ball
April 16th - 18th - Moab, UT for weekend fun
May 2nd - Philadelphia, PA for the Broad Street 10 Mile Run
May 15th - Ogden, UT for the Ogden Marathon

I also received a phone call with excellent news! The Salt Lake County Parks & Recreation have committed to 8 (maybe 12) softball fields and field crew for our 3rd annual charity softball tournament on September 10th & 11th. Not only that, they will handle all the on-line registration as well!

Things are going great! We'll have more to follow!

With love,
Lori

Check it out!

Latest press release - be patient, it takes a few minutes to download:

http://en.tackfilm.se/?id=1267589697987RA23

Enjoy!

Lori

Clear!

"There is no evidence of local mass recurrence or metastatic disease in the abdomen." Are those the most beautiful words you have ever heard in your life? The report also used the word "normal" three times, "status" twice and "unremarkable" once. Truly brilliant!

It wouldn't be fun unless we added a "however..." Nick has lost another pound, was given a script for antibiotics for his nasty chest cough and has "a small amount of perinephric fluid" which translates to fluid near his kidney, which is near his pancreas - or where his pancreas used to be. Weird, but not worrisome. They'll keep an eye on it for comparison when they do the next set of scans ......... IN MAY!

Nick has opted to discontinue his participation in the clinical trial, and has his doctors blessings. They told him to get healthy and fat. He should start to feel better soon, since he stopped taking the maintenance chemo pills on Feb 5th. I think this is where his fatigue was coming from and now he can just focus on being 21!

Thank you, everyone, for the continued prayers, support and love. Go ahead and celebrate - we are!

Lori

And the hat is on!

Nick will have scans on Tuesday and so my worry hat is firmly in place so when I flip out because we ran out of ketchup, no one will be surprised. Nick has settled into a routine of one day up and about and the next day completely wiped out. He is sporadic with the maintenance chemo because the mouth sores are very painful. He attends class only half the time, but is passing economics and acing computer and ceramics.

In other news, our dear friend Lisa Buechler has received some devastating news: her cancer has metasized into her bones throughout her body. She has some very hard decisions to make in the next few days. Jennie, Denise, Ruth and I have been spending all of our extra time at the hospital to help Lisa decifer the various scan results and physician opinions.

Please pray for Nick and Lisa this week. We meet with his doctor on Wednesday afternoon and I'll post again then.

Love to all of you!

Lori